Secure patient support and remote monitoring for myasthenia gravis
PATIENTS EMPOWERMENT WITH MYALINK
A companion app for patients with rare diseases such as myasthenia gravis. Specialists are available and can participate remotely in patients’ everyday illnesses.
Myasthenia gravis is a rare, potentially life-threatening autoimmune disease, which can affect any age. The disease is chronic and requires treatment by specialists.
Myasthenia gravis is caused by a fluctuating muscle weakness which can even impair respiratory functions. If symptoms worsen, patients need immediate and professional help.
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Lack of access to specialized care can prevent timely treatment decisions and lead to life-threatening crises and intensive care unit stays.
Our app closes a supply gap in the patient care. Vital parameters are monitored using spirometers and wearables and patients document their symptoms using standardized questionnaires (PROM).
The treating specialist can assess the course of the disease from a distance and contact the patient and, if necessary, adjust the therapy at an early stage. The long periods between appointments with specialists are no longer a black box and myasthenia crises can be prevented.
FOR PATIENTS
Early detection of disease activity and preventing crises in myasthenia gravis
MyaLink connects patients and the treating specialists in real time.
Ongoing monitoring indicates the need for action at an early stage. Therapy adjustments can be made in a timely manner and remotely. In addition, long-term monitoring provides practitioners with a more complete picture of the patient's clinical condition during routine visits to make better treatment decisions. This significantly improves the quality of life of patients.
MyaLink naturally meets the highest data protection requirements.
MONITORING
Recording vital parameters using a spirometer and wearable
DOCUMENTATION
Medication plan with reminders, documentation of laboratory results, emergency card, etc.
COMMUNICATION
Chat function for individual advice and consultation with specialists
INFORMATION
Updates from science, events and medical topics
FOR TRACTISTS
Achieving better treatment results for myasthenia gravis through telemonitoring
Current care is inadequate, poorly organized and frustrating for everyone involved. Therefore, there is little time for far-reaching treatment decisions.
With MyaLink, practitioners have constant access to important parameters to assess the patient's condition and adjust therapy remotely if necessary. This prevents avoidable crises and intensive care unit stays and leads to immense cost savings in the healthcare system.
Our vision is that patients with rare diseases receive the best possible care. In Germany alone, 4 million patients suffer from a rare disease.
We believe that every patient – no matter how rare their illness – should have access to a specialist when they need it. Together with monitoring the progression of the disease, this significantly improves treatment and quality of life for patients with rare diseases.
MyaLink - briefly explained
This is what myastenia patients say about our app
MyaLink was developed by a team of experts consisting of clinical and research neurologists together with a technology partner and patients
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