Screenshot der App MyaLin, der die Daten von verschiedenen Vitalparametern zeigt

Remote patient support and monitoring

PATIENT EMPOWERMENT WITH MYALINK

A companion app for patients with rare diseases such as myasthenia gravis. Specialists are available and can participate remotely in the patient's daily life.

FOR PATIENTS

Early detection of disease activity and prevention of crises

MyaLink connects patients and specialists in real time.

App Screenshot Spirometermessungen
App Screenshot Dokumentenordner
App Screenshot Patient:innen-Chat mit dem Spezialisten/der Spezialistin
App Screenshot Tagebuch

Continuous monitoring indicates the need for action at an early stage. Therapy adjustments can be made remotely and in good time. In addition, long-term monitoring provides practitioners with a more complete picture of the patient's clinical condition during routine visits, enabling them to make better treatment decisions. This significantly improves the patient's quality of life.

MyaLink meets the highest standards of data protection.

 

Myasthenia gravis is a rare, potentially life-threatening disease that can affect people of any age. The disease is chronic and requires specialist treatment.

Myasthenia gravis is characterised by fluctuating muscle weakness that can even affect respiratory function. When symptoms worsen, patients need immediate and professional help.

Lack of access to specialised care can prevent timely treatment decisions and lead to life-threatening crises and intensive care unit stays.

MyaLink closes a gap in patient care. Vital signs are monitored using spirometers and wearables and patients document their symptoms using standardised questionnaires (PROM).

The treating specialist can thus assess the course of the disease remotely and contact the patient and, if necessary, adjust the therapy at an early stage. Therefore, the long periods between appointments with specialists are no longer a black box and crises can be prevented.

Schaubild: MyaLink ermöglicht Fern-Kommunikation zwischen Spezialist:innen und Patient:innen
 
icon wearable

MONITORING

Recording of vital parameters by spirometer and wearable

icon dokumente

DOCUMENTATION

Medication plan with reminder funciton, documentation of laboratory results, digital emergency pass, etc.

Icon Kommunikation

COMMUNICATION

Chat function for individual counselling and consultation with specialist

Icon Information

INFORMATION

Updates from science and on events and medical topics

Foto: Eine Ärztin betrachtet auf dem MyaLink Dasboard die Vitalparameter eines Patienten

FOR HEALTH CARE PROFESSIONALS

Better treatment outcomes through telemonitoring

Current care is inadequate, poorly organised and frustrating for all involved. As a result, there is little time for far-reaching treatment decisions.
 
With MyaLink, practitioners have constant access to important parameters to assess the patient's condition and adjust therapy remotely if necessary. This prevents avoidable crises and intensive care unit stays and leads to immense cost savings in the healthcare system.

 

Our vision is that patients with rare diseases, so-called orphan diseases, receive the best possible care. In Germany alone, 4 million patients suffer from a rare disease.

We believe that every patient - no matter how rare their disease - should have access to a specialist when they need it. Together with monitoring of the course of the disease, this significantly improves the treatment and quality of life for patients with rare diseases.

TEAM

From practice to patient

MyaLink was developed by a team of experts consisting of clinicians and researchers in neurology, together with a technology partner and patients.

Portrait Dr. med. Sophie Lehnerer

Dr. med. Sophie Lehnerer

Medical & Health Economics

Portrait Dr. med. Lea Gerischer

Dr. med. Lea Gerischer

Medical & Research

Portrait Dr. med. Maike Krause

Dr. med. Maike Krause

Medical & Research

Portrait Prof. Dr. med. Andreas Meisel

Prof. Dr. med. Andreas Meisel

Network & Trials

Logo Qurasoft
Logo Deutsche Myasthenie Gesellschaft e.V.

Qurasoft

Tech Partner 

Deutsche Myasthenie Gesellschaft e.V.

Patient organisation

Logo Charité
Logo Neuro Cure Exzellenzcluster
Logo Berlin Institute of Health
Logo BIH Digital Health Accelerator
Logo Bundesministerium für Bildung und Forschung

MyaLink is an innovation project currently funded by the BIH Digital Health Accelerator programme.

 

Are you a patient with myasthenia gravis or another rare disease and want to use MyaLink? 

 

Are you a healthcare professional and would like to enable your myasthenia gravis patients to use MyaLink, or do you have further questions? 

Would you like to know more about MyaLink and the latest developments?