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  • MyaLink

Patient and stakeholder engagement workshop

In November 2023 the MyaLink team held a "Patient and Stakeholder Engagement Workshop" carried out at the Charité, which was funded by a grant at the Charité. Prior to this workshop, several practicing neurologists and their myasthenia patients used MyaLink during an one-month test phase, outside of a rigid study setting. The aim of the final workshop was to define desired improvements TOGETHER with patients and to design the next development steps. PSE is a relatively new area in medicine that is becoming increasingly important and is aimed at actively involving patients in research, for which the MyaLink team has been awarded funding.



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